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Nancy Keene
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Childhood Leukemia: A Guide for Families, Friends & Caregivers (Patient Centered Guides) Paperback – October 11, 1999

by Nancy Keene (Author)
4.7 4.7 out of 5 stars 43 ratings
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Childhood Leukemia: A Guide for Families, Friends & Caregivers
Childhood Leukemia: A Guide for Families, Friends & Caregivers
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This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This second edition contains significant updates to the information on treatments, chemotherapy drugs, bone marrow transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.

Previous page
  1. Print length
    513 pages
  2. Language
    English
  3. Publisher
    Childhood Cancer Guides
  4. Publication date
    October 11, 1999
  5. Dimensions
    6 x 1.08 x 9 inches
  6. ISBN-10
    1565926323
  7. ISBN-13
    978-1565926325
  8. See all details
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Editorial Reviews

About the Author

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

Product details

  • Publisher ‏ : ‎ Childhood Cancer Guides; Second edition (October 11, 1999)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 513 pages
  • ISBN-10 ‏ : ‎ 1565926323
  • ISBN-13 ‏ : ‎ 978-1565926325
  • Item Weight ‏ : ‎ 1.54 pounds
  • Dimensions ‏ : ‎ 6 x 1.08 x 9 inches
  • Customer Reviews:
    4.7 4.7 out of 5 stars 43 ratings

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Customer reviews

4.7 out of 5 stars
4.7 out of 5
43 global ratings

Top reviews from the United States

L. Walker
5.0 out of 5 stars This is hands-down the BEST book written on childhood leukemia
Reviewed in the United States on November 10, 2010
Verified Purchase
I second all the wonderful things said about this book. I lament that our medical team didn't hand it to us on the day our 3 year old was diagnosed with ALL. I found it later and have bought several copies which I hand out to those whom have just been diagnosed. And now that we are almost done with treatment (3.5 years later), I can say that this book has been essential to our journey. Far more so than any other reference (even the internet).

A few things I really like about this book:
1) I love having all the drug information organized and easy to read
2) I love the personal quotes throughout from parents who have been through what we are going through
3) I love the hints and tips about how to make hospitalization easier including who makes up our medical team. As well as, what to expect while in the hospital.
4) I covers complications to treatment, insurance hints, and sections none of us want to visit (BMT, relapse and death and dying)
5) The importance of finding support for the whole family

This is a MUST have book for everyone who has a children diagnosed with ALL. MUST HAVE!! It is well organized and readable. Buy it. You wont regret it. It has been a great support to our family.
One person found this helpful
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MamaZ
4.0 out of 5 stars Bought for friends
Reviewed in the United States on January 10, 2011
Verified Purchase
I bought this for friends when their daughter was dx with Leukemia. I read some of it when it arrived and found it helpful in helping them. They used it quite a bit during the course of her treatment, finding that they needed different chapters as things progressed and treatments changed.
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scrumdiddlyumptious
5.0 out of 5 stars Basically All You Need to Know about Childhood Leukemia
Reviewed in the United States on September 28, 2011
Verified Purchase
This book is a fantastic resource for any family, friends of, educators, etc - anyone dealing with childhood leukemia in their lives. My nephew was diagnosed with ALL when he was 2 years old and right away, I needed to know more about what we were all dealing with. This book educated me on all of the facts, medication and treatments and experiences we might face as a family. Not only do you learn what leukemia is all about and how chemotherapy treatments will go, but you also learn how to deal psychologically with everything happening. The whole world seems to change when you or your family is impacted with such a terminal illness and a lot of people may not know how to deal or what to expect. This book HELPS - IT REALLY HELPS. I reccommend it to anyone and everyone who wants to know more about childhood leukemia, any family who is directly impacted and any caretakers, teachers, counselors who may encounter those experiencing this illness.... THIS BOOK IS WORTH EVERY PENNY and MORE.
2 people found this helpful
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Artist
5.0 out of 5 stars Donate a book to your local children's hospital.
Reviewed in the United States on May 27, 2001
Verified Purchase
This is an excellent book. If you are finished with your copy, please give it to someone in the waiting room with you next time you take your child in for chemo. Or better yet, buy a new one now and give it to someone who has a newly diagnosed child. Enjoy watching your donation change someone's experience for the better first hand. My grandson Jonnie, who has leukemia, also has a charity that benefits patients at Children's Hospital Los Angeles. We donate these books and also toys. Send a book there in his name. If you need to see bone marrow aspiration photos go to [...] These photos take the fear away for some kids who experience the procedure, but never get to see it done.
This disease is rare. We're very lucky to have a book like this. Let's do what we can to see that everyone who can use it has a copy.
5 people found this helpful
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Susan Howe
4.0 out of 5 stars very helpful
Reviewed in the United States on February 17, 2014
Verified Purchase
have a 2.5 yr old grandson recently diagnosed , and want to know as much as I can to be supportive as I can.
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jimmy
5.0 out of 5 stars Great Book!!!
Reviewed in the United States on June 16, 2011
Verified Purchase
The book is very informative but simple enough for the common joe. Tells what to expect, what to prepare for and how to respond to different phases of the sickness and treatment, as well as different situations that may happen. And it helps keep you optimistic while still being realistic about your child's prognosis. It shares parent's reactions, the pain, and the determination to save their child... things which you will be able to relate to and will remind you that your child and you are not the only ones facing this situation.
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Carrie
5.0 out of 5 stars Informative in plain language
Reviewed in the United States on August 31, 2015
Verified Purchase
This book is very informative for a parent whose child was recently diagnosed with Leukemia. It helped to make sense what the Dr.'s were telling me. Easy to read.
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Pedro J Maldonado
5.0 out of 5 stars Excellent source of information
Reviewed in the United States on July 18, 2017
Verified Purchase
This is an excellent and updated source of information for parents and family members of children fighting this disease. Our daughter's doctor gave us the printed version and I decided to buy the e-book to have it handy on my electronic devices.
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Top reviews from other countries

Ol2000
5.0 out of 5 stars Very thorough account of leukemia in children. I read ...
Reviewed in the United Kingdom on August 8, 2017
Verified Purchase
Very thorough account of leukemia in children. I read it all the time, sometimes go back to different chapters over and over again while my son is being treated from ALL.
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Amazon Customer
5.0 out of 5 stars Highly recommended
Reviewed in the United Kingdom on April 27, 2017
Verified Purchase
Great book, everything explained simply but comprehensively, would recommend it to any parent that is going through the nightmare that is childhood leukemia
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Craig boulton
5.0 out of 5 stars Five Stars
Reviewed in the United Kingdom on November 14, 2014
Verified Purchase
a excellent read and has really helped us through this terrible time
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